Friday, June 23, 2017

Between Two Worlds

When we first began this cancer journey, it was all consuming.  I couldn't think of anything else or make any decisions or honestly... stop crying.

As the days have passed, it's amazed me at the capacity of the human heart to continue living with such heart ache.  But we do.  We get up every day (some days more easily than others) and do what needs to be done. At times, I'm never sure exactly how.  But by God's grace.

Now that we are heading into six months of this, our daily lives have somewhat resumed.  We are home. The kids are out of school for the Summer.  Mission trips and jobs, workouts and summer league games.  We're back at it.

And yet, our boy still has cancer.

It's like straddling over the border between two worlds.  One foot?  It's in the normal world.  Our marriage, our home, our kids.  Life is still moving on.  Laundry has to be done and meals made and dishes washed and groceries bought and floors vacuumed.  Just normal stuff.

The other foot is in the cancer fight with our boy.  He's not living in that normal world right now.  His world is filled with pain and weakness and chemo and blood draws and piles of daily meds.  Every now and then he ventures into the normal world with a visit to a friend's house or a walk in the neighborhood or a drive to his grandparents.  But his trips out are short and infrequent.  Mostly he stays put in the cancer world.

Although I hover between the two?  I have to move from one to the other throughout every day.  When we have appointments or treatments or when he's really sick, I'm in cancer world.  When he feels good and ventures into normal world, I join him there.  When the Coach or a friend enters his world for a time, sometimes I can step more fully into normal with the troops or a friend for a bit and spend some time.

Most of the time I'm stranded between the two.  Knowing that life moves on all around us, but in cancer world it's different.  We don't know what the future will look like, or how long it will take, but it's our first and most important job right now.  Getting our boy well.  Caring for him in whatever way he needs.

I don't ask or expect anyone else in our journey to live between these two worlds.  The Coach joins our boy and I - any time we need him to.  He's been amazing and strong and PRESENT.  I couldn't be more thankful for him.  But he can't live in the cancer world. He has his work and responsibility and although we have him whenever we need him, he comes and goes.  The troops visit, as well.  Coming to appointments or treatments or hanging with their brother in his room when he's not feeling well.  They've been amazing, too.  But they can't live there - their lives have to keep on keeping on.  We've been blessed with a few precious friends whom our boy will allow to join him in his world, as well.  I can't say what a gift that is... it's more important than I ever thought possible.  Having friends means so much.  Not everyone is willing to step inside his world, but those who do are precious to us.

Maybe the hardest part of all, is that none of us can really live fully where he is right now.  I can be there a lot, I can straddle that line, I can make him my top priority, but I can't do it for him.  I can't feel what he's feeling and fight the battles he faces or take his place.

My ability to care for and walk with and encourage my boy wouldn't give me much hope.  I'm just his momma.  He's an adult.  The pain and fears and struggles he faces are so far beyond anything I could ever make better.

PRAISE THE LIVING LORD that even when we aren't with him, His loving Savior is.  Always.  Going before, preparing the way, and walking not just with us, but with HIM.  Every moment giving him strength and grace and peace.  Things I can't give him.  No one else can.  But God keeps His promises.  And He has promised to never leave or forsake us.  He's promised that all things work for good.  He's promised that He has a plan for us and it's always good.  He's promised that nothing can take us out of His hand.  He's promised that nothing can separate us form His love.  He's promised that He is with us always.

So my hope in this journey isn't my ability to be a good momma and try to meet every need my precious son has.  Although you'll find me making those trips to get that one food that sounds good to him, or sitting with him while he sleeps, or reading aloud CS Lewis (even if it's in the middle of the book and I'm completely confused!)... flushing PICC lines, changing sheets, making smoothies, doing everything I can to make this hard thing easier.

My source of hope, for him and for ALL of my troops, is knowing that they have the Sovereign Lord and King of Kings as their own Loving Father to walk with them in the trials of life.  Being ever present in whatever world they are living in.  I won't ever been able to do that for them.

But with Jesus, they have all they need.  So thankful they all belong to Him.


Tuesday, June 13, 2017

Checking it off...

Back on April 13, after two rounds of Hyper-CVAD, our boy's doctor handed us his next round of treatment.  An abbreviated (because of the previous two rounds of a different protocol) "Induction Phase". That confusing thick stack of stapled pink pages became our road map.  We learned the pattern, the drugs, the side-effects. It was changed, altered, delayed - countless times over the next eight weeks (weeks longer than it originally called for), but today?

We crossed that very last chemo treatment off the pink list.  The first phase (of three) is done.

This is a huge milestone for all of us.  Obviously.

But the amazing part is that our boy has been WELL, lately.  He had a rough ROUGH April and first of May.  Several ER visits, one emergency surgery and three admissions for hospital stays.  But these last few weeks he's been better than we could have imagined!  We are so thankful.

Our idea of "well" has changed, obviously.  The round-the-clock nausea meds, the regular blood transfusions, the vomiting, and shiny bald head with it's occasional fuzz...

That's really, really good around here.

I know we have more rough seasons ahead.  But we are learning every day to enjoy the good moments.  The times when he DOES feel like eating, or visiting with friends, or even going for a SWIM (thanks to a skin infection that led to having his PICC line pulled).

As for the other troops, one just returned from Mexico, another from Chicago, and we sent one off to Africa for two weeks.  The Coach is re-doing the garage - paint, shelving and floor.  We finished cleaning and organizing the attic last week, while Little Man had basketball camp.  I'm back at bootcamp in the mornings, since it's earlier to beat the heat and our boy is usually still asleep.  The other big boys have started their summer jobs and the girls are working at VBS while Little Man attends this week.  Daughter (#2) is back to her nanny job - at least when she's not in Africa.

Life almost feels normal.

But then again, normal has changed so much here.  Cancer is a part of our daily lives with its treatments, medications, and nasty side effects.

But so is laughing and teasing each other and working hard side by side.

I remember in those early days after diagnosis, a couple of precious friends who have walked much much harder roads than I, told me that the sweet fellowship with Jesus would come through the pain.  I scoffed.  I didn't want the pain so much that I was willing to risk the deepened fellowship, as well.

Of course.  I couldn't imagine my boy's suffering bringing any good.  How could it?

OH BUT IT HAS.

I've watched him do this WELL. Not in his own strength, but leaning hard on the Lord and finding Him sufficient.  It's grown my faith in leaps and bounds to see him walking so faithfully.  To see how he's a picture of God's grace to his siblings and cousins and friends and doctors and nurses and every one he meets.

The Coach and I have shared more heart-ache than I could have imagined, but we've also found a new, sweet closeness that I can't think about without tears of thankfulness.  To walk through the hard of life and be loved so well.  How could I not thank the Lord for that?

I've watched the troops in their own sadness and grief and fear.  Sat with them as they've cried and been frustrated with so much change and pain and loss.  I've been blessed to see them find our Heavenly Father sufficient. Each of them, in their need for answers and comfort and assurance, seeking the Lord on their own and finding Him always there.

Many of you have heard the Coach tell how faithful God has been to our family.  And some of you have heard our boy say that the most important thing is knowing God and trusting Him.  I'm in awe of God's goodness to us.

On Tuesday, one week from today, we start the 6 week interim phase of the treatment protocol.  Lots more chemo.  And in a month or so, after more scans and biopsies and tests, we may know if we are looking at maintenance treatment... or a bone marrow transplant.

I'm not sure how we'll do it.  Just like I wasn't sure over 4 months ago how we'd do it.

But I know God will still be faithful.  Tomorrow.  Next week.  Next month.  Next year.

He never changes and we can trust Him.  Always.

Thank you all for your precious prayers and for continuing to intercede for our boy.  Thank you for feeding us, folding laundry, running errands, helping with kids, sending the sweetest notes and cards and gifts.  It takes my breath away to think of HOW MUCH HELP you've given us.  I would never be able to thank all of you enough.  I pray that your eternal reward will be great.  The Lord sees your hearts and your love.  It matters.  It's lessened the burden for us and given us such comfort. There really aren't words.

I'm thankful today that we are further along in this journey.  Remembering God's faithfulness all of the way.  He'll be faithful tomorrow, too.  Whatever we have ahead of us, we can continue to trust Him in it.